Did you know? April is Citizen Science month!
What is Citizen science?
Citizen science is a term that is growing in popularity; you are likely familiar with it without even realizing. Every time you’ve filled out a survey on a subject outside of your field, posted your opinion about a research topic or scientific area of interest on social media, or shared a picture you took in nature hoping someone could identify the species you encountered, you were participating in citizen science. In the recently published ebook, The Science of Citizen Science, the authors define citizen science as active engagement in the scientific process by a member of the public (Vohland et al., 2021).
Citizen science and COVID-19

Recently, amateur scientists across the globe, including many Canadians, have joined in the efforts to help track and combat the global pandemic that has been with us now for over a year. By engaging the public in data collection (most often using the Internet, smartphones, and social media), researchers can retrieve more data over a shorter period of time, and from more representative demographics.
Smartphone apps like Zoe, the COVID Symptom Study app, help researchers track the spread of COVID-19. Likewise, many academic journal publishers are enabling researchers to publish their findings faster and more freely, ultimately working towards increasing the global body of knowledge on COVID-19 (Redhead, 2020).
Despite the numerous benefits of this type of public engagement, there are some things to be wary of, including the integrity and security of your personal information. Remember to read the fine print before hitting the ‘I agree’ button. Always make sure the app, website, or organization conducting the research states clearly that they will maintain your anonymity to the best of their ability (Katapally, 2020).
Even with the risks, citizen science has proven that international collaboration is key to fighting back against this deadly virus—just look at how smartphone apps across the world have helped governments and researchers track the spread of COVID-19 (Birkin, Vasileiou, Stagg, 2021)!
Ready to become a citizen scientist?
Here are some of the ways you can participate in citizen science and help the world grow closer to understanding the impact of COVID-19:
Become a FluWatcher
Before COVID-19, FluWatchers helped scientists from the Public Health Agency of Canada monitor the spread of flu-like illnesses across Canada. Now registered volunteer FluWatchers are also tracking COVID-19 by answering two quick health-related questions each week.
Outbreaks Near Me
This website was created to help the public securely and anonymously check in to help researchers track symptoms of COVID-19 across North America.
CoronaReport
The COVID-19 pandemic has affected more than just our physical health. Citizens can use this app to help track the impact of the coronavirus on their social, mental, and behavioural health, too.
Cochrane Crowd
Help Cochrane’s collaborative team of volunteers categorize and summarize health care research in support of evidence-based medicine.
For more information, visit our COVID-19 Research guide and stay up to date: https://library.nshealth.ca/COVID19Research.
References
Birkin, L.J, Vasileiou, E, Stagg, H.R., (2021). Citizen science in the time of COVID-19. Thorax. doi: 10.1136/thoraxjnl-2020-216673
Katapally T. R. (2020). A Global Digital Citizen Science Policy to Tackle Pandemics Like COVID-19. J Med Internet Res, 22(5), e19357. https://doi.org/10.2196/19357
Redhead, C. (2020, April 27). Scholarly publishers are working together to maximize efficiency during COVID-19 pandemic. Open Access Scholarly Publishing Association. https://oaspa.org/scholarly-publishers-working-together-during-covid-19-pandemic/
Vohland, K., Land-zandstra, A., Ceccaroni, L., Lemmens, R., Perelló, J., Ponti, M., Samson, R., ... Wagenknecht, K. (2021). The Science of Citizen Science. Springer International Publishing. https://doi.org/10.1007/978-3-030-58278-4

Kallen Rutledge
Librarian Educator
Nova Scotia Hospital, Central Zone
If the COVID-19 pandemic has taught us anything, it’s that we should not underestimate the importance of being able to read, understand, and act on the health information being shared with the Canadian public. With the contrast between the surge of health directives aimed at Canadians and the frequent examples of social behaviour that seem to defy public health orders (Papadakos et al., 2021), one may wonder, how did we get here?
As a health care professional, you are likely familiar with the concept of health literacy: a person’s ability to “access, understand, and utilize information in order to create an informed decision regarding their health” (van Ballegooie & Honag, 2021). In Canada, it’s reported that nine million people have limited literacy skills (Chen et al., 2021), with over half of Canadians reading below a high school level (van Ballegooie & Honag, 2021).
It is important to remember that many factors contribute to a person’s health literacy. Health literacy is not just being able to read and understand written health information. It is affected by a person’s confidence in asking questions, their experience using health resources to stay healthy, and their ability to successfully navigate the health care system. This last point includes a person’s ability to access preventative screening, make decisions about treatments, and self-manage their health at home (Lloyd et al., 2021; Qi et al., 2021; Olisarova et al., 2021).
Re-examining Canadians’ health literacy matters now more than ever (Abrams et al., 2021; Chowdhury et al., 2021; Papadakos et al., 2021; Qi et al., 2021) as health care professionals continue national efforts to contain the spread of the coronavirus and support thousands of Canadians as they recover from COVID-19 (PHAC, 2021).
Although addressing the health literacy of Canadians is only one contributor to slowing the spread of the coronavirus, it is a significant one. If Canadians do not have a sufficient understanding of preventative health messaging about COVID-19, the risk of infection and spread of the virus is higher (Abdel-Latif, 2020).
How can health care teams integrate what we know about health literacy into clinical area(s)?
References
Papadakos, J., Reznikov, V., Giannopoulos, E., Giuliani, M., & Papadakos, T. (2021). The literacy demand of cancer & COVID-19 consumer health information. Journal of Consumer Health on the Internet, 25(1), 50–64. https://doi.org/10.1080/15398285.2020.1858258
van Ballegooie, C., & Hoang, P. (2021). Health services: A mixed methods assessment of Canadian cancer patient education materials related to the 2019 novel coronavirus. Cancer Control, 28, 107327482198970. https://doi.org/10.1177/1073274821989709
Chen, A. M. H., Armbruster, A. L., Buckley, B., Campbell, J. A., Dang, D. K., Devraj, R., Drame, I., Edwards, A., Haack, S. L., Ma, Q., Petry, N., Planas, L. G., Sadowski, C. A., Santee, J., Wade, L., & Borja-Hart, N. (2021). Inclusion of health disparities, cultural competence, and health literacy content in US and Canadian pharmacy curriculums. American Journal of Pharmaceutical Education, 85(1), 8200. https://doi.org/10.5688/ajpe8200
Lloyd, J. E., Song, H. J., Dennis, S. M., Dunbar, N., Harris, E., & Harris, M. F. (2018). A paucity of strategies for developing health literate organisations: A systematic review. PLoS ONE, 13(4), e0195018. https://doi.org/10.1371/journal.pone.0195018
Qi, S., Hua, F., Xu, S., Zhou, Z., & Liu, F. (2021). Trends of global health literacy research (1995-2020): Analysis of mapping knowledge domains based on citation data mining. PloS One, 16(8), e0254988. https://doi.org/10.1371/journal.pone.0254988
Olisarova, V., Kaas, J., Staskova, V., Bartlova, S., Papp, K., Nagorska, M., Korucova, R., & Reifsnider, E. (2021). Health literacy and behavioral health factors in adults. Public Health, 190, 75–81. https://doi.org/10.1016/j.puhe.2020.11.011
Canadian Council on Learning. (2008). Health literacy in Canada: A healthy understanding. http://www.en.copian.ca/library/research/ccl/health/health.pdf
Council of Ministers of Education, Canada & the Public Health Agency of Canada. (2017). The health and social dimensions of adult skills in Canada: Findings from the Programme for the International Assessment of Adult Competencies (PIAAC). http://www.piaac.ca/docs/PIAAC2018/PIAAC%202012_Health%20and%20Social%20Dimensions_Canada%20EN.pdf
Abrams, E. M., Singer, A. G., Greenhawt, M., Stukus, D., & Shaker, M. (2021). Ten tips for improving your clinical practice during the COVID-19 pandemic. Current Opinion in Pediatrics, 33(2), 260–267. https://doi.org/10.1097/MOP.0000000000000998
Chowdhury, N., Khalid, A., & Turin, T. C. (2021). Understanding misinformation infodemic during public health emergencies due to large-scale disease outbreaks: A rapid review. Journal of Public Health (Berlin), 1–21. https://doi.org/10.1007/s10389-021-01565-3
Abdel-Latif, M. M. M. (2020). The enigma of health literacy and COVID-19 pandemic. Public Health, 185, 95–96. https://doi.org/10.1016/j.puhe.2020.06.030
Public Health Agency of Canada. (2021, August 20). COVID-19 daily epidemiology update. Canada.ca. https://health-infobase.canada.ca/covid-19/epidemiological-summary-covid-19-cases.html
Kallen Rutledge
Librarian Educator, Patient Education Pamphlets Lead
Nova Scotia Hospital, Central Zone